Tough Week

As of Monday, Kennedy is down to two medicines, twice a day.  It's nice because our mid-day dose is completely gone and any day plans often had to revolve around being able to take her medicine....or take it with us (and of course the bottles always leaked).  To me, she's seemed more alert and bright eyed despite being sleep deprived.

Kennedy hasn't woken up screaming any this week, but she has tossed and turned every night and whimpered some in her sleep.  I'm not sure if she's having bad dreams or just weird dreams because she can't really communicate anything about her dreams.  I've been putting her to bed at 7 each evening and she sleeps until at least 6:30 the following morning.  Most of the week we had her sleep on an air mattress in our room in case she had any sleep walking or nightmares, but she has so restless that none of us were sleeping.  So she's returned to her own bed...in her own room....

The return to school this week has been tough on her!  Of course, any kiddo has trouble getting back into the swing of things after a break, but she has always had a more difficult time.  Couple that with medicine changes and sleep deprivation and it's not been a good week for her.  She's extra agitated (side effect of her meds) and has no patience to work on any activity.  She immediately shuts down and says the work is too hard-- when it's obviously not.  Hopefully this will get better.  One thing I have noticed is that she doesn't look exhausted when I pick her up in the afternoons.  It could be because she doesn't get that mid-day dose or maybe she just feels better with the new medicine.  Oh and did I mention I've only seen TWO seizures since she started the new meds??  Thank you, Jesus!!

Yesterday, Kennedy took quite a spill at her friend's house trying to get out of the sandbox.  She has extremely delayed reflexes so injuries are quite common for her because she's unable to break her fall.  She has a pretty nasty lip but she didn't cry at all when it happened.  I can hardly believe it.  She's one tough cookie!!  She constantly amazes me with her strength!